Questions without easy answers (14/5/11)

“Dear Kijabe Hospital,
I ….  was admitted on ……..  I was diagnosed with hypertension and I was 27 weeks pregnant.
I was told that the child I was carrying could not grow and so she was removed.  On removal she was found to be only 855 g and she was taken to the nursery.
Due to the huge bill I incurred in the hospital which upon the time I was discharged I could not clear, I could not afford to pay the money which could help my baby grow.  I have so decided to give the child to the hospital.
Yours faithfully….”

What do you do when you read such a note?  The hospital here charges for its services, as does every government-run and mission hospital in the country.  A hospital bed is charged at 200KSh (about $2) per day, drugs are obtained at deep discounts and charged at close to cost.  The hospital staff are paid Kenyan nurses and some doctors, with most of the doctors volunteers.   Yet after 2 months, this little princess, alive and thriving, has accumulated a bill that is prohibitive for her mother.  A mother whose decision is difficult to question when none of us has walked in her shoes.

That baby is nearly 2kg now, beautiful and ready for discharge.  We haven’t been able to contact mum for weeks.  Social work is working on finding her extended family, and in this culture where family is everything, where any wealth obtained is always shared, I know this child will find her way home.

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Last week,  we received a surprise admission.  A surprise because after asking to be transferred to the children’s hospital, this little girl had left us.  Born with a cleft lip and palate, heart condition, and probably several other problems we haven’t found yet, with us she could not receive heart surgery.  She was on an arsenal of old-man drugs – digoxin, lasix, sildenafil, and as stable as we could make her.  And so her parents got together the money for her admission in Nairobi under a cardiologist for an opinion, and a charitable organisation paid for her ambulance transfer.

And then she was back the next day.  It turns out the hospital required a deposit for high dependency care of 20,000KSh ($200) – an astronomical amount in this rural area where unemployment is around 40%, and if a menial job can be found it might pay around 8,000KSh per month.  They were then advised to try the nearby government hospital, where after 5 hours of waiting to talk to somebody they gave up and came back to Kijabe.

The question is – what was lost and what was gained?  This baby has multiple problems, and may have an undiagnosed genetic disorder.  Is the heart condition what we should focus on?  Should we spend the money finding what else is wrong?  Would any or all of it be fixable?  Does this baby have a condition which would cause her to succumb before its first birthday no matter what we do?

She’s been deteriorating over the last few days.  She’s on a lot of oxygen, because the blood pressure in her lungs won’t let the blood get in properly, despite everything we’re doing.  I’m not sure how much longer she’s got.

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There are many wonderful stories I’ll tell you in another post, about lives saved, about babies snatched from death’s door who are now snuggled up to their mum’s breast back at home.  This was just the stuff that grabbed me today as I was in the nursery, filled to capacity with 20 babies and 2 nurses.

I wouldn’t be anywhere else right now.

M.

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Update 17/5 – The second baby above died today.  Her heart just couldn’t do it any more.  Sometimes, in the middle of our angst, our questions answer themselves.

 

Author: steeres

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8 Comments

  1. Heart-rending stuff, Mardi. Thanks for sharing. Will pray more fervently for wisdom for you and the staff there.

  2. This stuff breaks my heart Mardi,always did in my married years and I swore I/we would adopt a child of need.The wide discrepancy in our social views were our undoing as a married unit.Does not stop wanting me to keep up social awareness everywhere.Amazing you are.Amazing..and I need to introduce you to James Muecke once you’re back..a man with a mission to help others..known him for 25 years now..amazing man indeed.Hope you’re allwell kiss Riley and Liam for me xx

  3. Hi Mardi,

    I found you via Allison Williams, where I am a friend of hers.

    Your posts touch my heart, and as a mother they also make me feel both sad and lucky.

    Is there any way someone can help? or donate?

    cheers
    Cath

  4. Blessed are those . . .

  5. Mardi, thinking of you, of all the difficult decisions and situations, of all the lives you’re now involved in. Praying for you. lot of love, Nanxxx

  6. Thanks so much Nan, Drew and Cath – glad to meet you via my most wonderful cousin! There is a needy patients’ fund here that I am trying to find out the details of. Once I know that, I will get back to the blog and update. Please keep reading, and thanks so much for the love and support.

  7. Mardi. its just so wonderful that you guys are there. Praise God for what he’s doing!
    I’m sooooo glad you are right where you need to be.
    Love
    Jen

  8. Love to you Fi – will definitely pass on your love to the kids! It’s a complex life we lead, isn’t it, always pulled between conflicting priorities. All we can do is make the best decisions we can each day, knowing that God’s given us the freedom to choose…. and how hard it can be to live in a world where we see the impact of people’s choices on each other for better, or for worse. Will keep updating as I have more to share!

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